Planning for children with special needs is a challenge for parents. I know first hand that just surviving is almost too much. On the other hand, I know how strong these parents are. They do more than humanly possible at times.
However, an article states that parents do not do enough legal planning. The article in the Mikwuakee Business Journal states:
Most parents want to save money for education or leave something for their children in their wills. But local financial planners and lawyers say failing to plan properly can jeopardize the special needs dependent's eligibility for government benefits, like Medicaid and Social Security Disability Income.
Planners and lawyers recommend setting up a special needs or supplemental trust for the child.
As a parent I know how hard it is. But as an estate planning lawyer I know how very important it is.
When my daughter was about eight months old, my wife felt something was wrong. By that time, my daughter was already being treated for bilateral club feet. I said she was just being overly worried, but I agreed go with her to the appointment. (Denial?)
I remember that first appointment when the pediatrician said that she wanted a second opinion. We were in for a ride. The doctor rattled off a list of specialists for us to see. Plastic surgeon, neurologist, geneticist.....
Whew, it is now nine years later. Thank goodness for skilled physicians, therapists, special schools, excellent teachers, etc. My daughter is doing great and her future looks good.
And, I know what she needs from my estate planning.